Talasemia adalah kecacatan genetik yang paling biasa didapati, dengan kira-kira 250 juta orang, 4.5 peratus daripada penduduk dunia adalah pengidap yang menghadapi ancaman maut. Pada 2010, Malaysia merekodkan 4,768 orang pesakit talasemia yang memerlukan pemindahan darah yang kerap. Manakala 5% daripada penduduknya adalah pembawa.

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Useful Thalassaemia Centres, Societies and Links

Persatuan Thalassaemia Malaysia
3rd Floor, National Cancer Society Building,
66, Jalan Raja Muda Abdul Aziz
50300 Kuala Lumpur
Tel : 03-26941141 Fax : 03-26941142
Email : malaysiathalassaemia@yahoo.com
pertam@po.jaring.my

Thalassaemia Society Of University Hospital
Address: Department Of Paediatrics,
University Hospital, Lembah Pantai,
59100 Kuala Lumpur.
Tel: 03-79502275 Fax: 03-79556114

The Penang Thalassaemia SocietyAddress : Room CO-38 & 39 UP, Kompleks Masyarakat Penyayang
Jalan Utama, 10450 Pulau Pinang.
Tel/Fax: 04-2272133
E-mail: penthal@streamyx.com
Patron: YABhg Toh Puan Datin Seri Hajah Majimor bt Sharif


THALASSAEMIA CLINICS

Klinik Pakar Kanak-Kanak,
Penang General Hospital
Tel: 04-2002299
Ambulatory Care Centre (ACC),
Unit Rawatan Harian Perubatan (Day Care Centre),
2nd Floor, Haematology - Thalassaemia Adult & Paediatric
Persons in Charge:
Zailawati Bt Mamat ( Adult ),
S/N Noorhafisah Bt Radzi (Paediatrics )
Tel: 04-2293333 Ext 2809

Klinik Pakar Kanak-Kanak,
Seberang Jaya Hospital, Prai.
Tel: 04-3983333


FEDERATION MALAYSIA THALASSAEMIA SOCIETY
Address : 5017, 1st Floor Bangunan PKNK,
Jalan Tun Abdul Razak
05200 Alor Setar,
Kedah Darul Aman.
Tel: 04-7303039


THALASSAEMIA SOCIETIES OF OTHER STATES
Johor Thalassaemia Society
Address: Lot 5395, Jalan Kurniawati
Jalan Kurniawati,
Kampung Kurnia,
80250 Johor Bahru.
Tel: 07-3320369 Fax: 07-3332724

Kedah Thalassaemia Society
Address: C/O No. 97,
Taman Nuri Jalan Dato Kumbar,
05300 Alor Setar,
Kedah Darul Aman
Tel/Fax: 04-7306340

Malacca Association Of Thalassaemia
Address: No. 21,
Jalan Malinja 1 ,
Taman Malinja,
75150 Bukit Baru, Melaka.
Tel/Fax: 06-2836937

Sabah Thalassaemia Society
Address: P.O. Box 22748,
88787 Luyang Kota Kinabalu, Sabah.
Tel/Fax: 08-8252176

Sarawak Thalassaemia Society
Address: C/O 8 Kim San Court,
93200 Kuching, Sarawak.
Tel: 082-240881 Fax: 082-415691

Perak Thalassaemia Society
Address: No.44, (1st Floor) Jalan Masjid,
30300 Ipoh, Perak
Tel/Fax: 05-2432470

Kuantan Thalassaemia Society
Address: No.8, Lorong Air Putih 1,
Off Jalan Beserah, 25300 Kuantan,
Pahang Darul Makmur.
Tel/Fax: 09-5669180

Kelantan Thalassaemia Society
Address: Lot 1251,
Level 1 Depan Istana Mahkota Yahaya Petra,
Jalan Sultan ,Kubang Kerian,
15200 Kota Bahru, Kelantan.
Tel: 09-7646206 Fax: 09-7646208

Thalassaemia Society Of University Hospital
Address: Department Of Paediatrics,
University Hospital, Lembah Pantai,
59100 Kuala Lumpur.
Tel: 03-79502275 Fax: 03-79556114

4 comments:

  1. Adly, Can you link me to the Johor Thal Society. I tried calling the number, no one picked up!

    ReplyDelete
  2. Very sorry Syida for late reply. Not pretty sure what happened to their society. But in case you need help you may direct your request to Thalassaemia Centre which normally available at government hospitals near you.

    ReplyDelete
  3. I heard that there is now a "all-in-one" thalassemia test for Alpha-Beta... they claim to have all key mutation markers available in a single test based on ASEAN population... anyone heard of these guys - www.sengenics.com... they work with Oxford and NHS, UK....

    ReplyDelete
  4. Yes Joey. I just did through sime darby med center. The blood was sent to UM.

    ReplyDelete

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